My trip to St Helier today went well but must admit I am now realising that this recovery game is going to be quite lengthy. I should be able to return to work in November but even then, I will be making weekly trips into the Hospital and my medication will still be going through changes. Come Christmas/New Year, I should begin to see hospital visits drop to once every two weeks and they further reduce them in the months to follow.
Today went well, blood pressure is under control, weight popped up by a couple of kilos – hmmm, could be the chocolate, bananas, milk, yogurt etc. Incidentally prior to the operation, I wasn’t allowed to eat any of those things but now I can. Best of all, I can have Prawns, more seafood and fish. The only thing I won’t ever be able to have again, is grapefruit. A shame as I used to love that! If I did eat it though, it would prevent my Tacrolimus drugs from working at all and that would have a very bad effect on my health indeed. It would in fact probably kill me! I never considered grapefruit to be deadly, so if you ever wanted to kill me for any reason, don’t bother with a gun, a pointed stick, knife, snakes venom etc – A humble grapefruit would do the trick! Moving on….
Creatininee, creatinine, creatinine – How’s this little devil doing? Well its dropped back down to 184 (you may recall from an earlier blog post that it was 214 on Monday). This is very good news but we are still concerned it may edge upwards again and repeat this cycle again and again. Dr Andrews decided that we should leave my medication as it is for now, making changes next week quite probably.
Going back to Tacrolimus – They measure the amount of this stuff that is floating around your bloodstream and if its too high, it can become toxic which in turn upsets the kidney and causes it to “doze off” and not work at full pelt. If the Tacrolimus is way too low, it can also be detrimental to your existence on Planet Earth. So they prefer to set it hight and slowly reduce it until you hit the magic mg (milligram) measurement and mine is 5mg at 10am an 10pm each day.
Talking of droogs, I take quite a lot at the moment that our medicine cabinet is probably beginning to look like a branch of Boots chemists. Here goes my list!!!!
- Tacrolimus – Immunosuppressant for anti-rejection
- Prednisilone – Ditto
- Omeprazole – To reduce stomach acidty which could lead to ulcers
- Co-trimoxazole – Prevention of chest infections
- Bendrofluazide – Blood pressure (water tablets)
- Doxazosin – Ditto
- Amlopodine – Ditto
- Mycophenolate – Anti-rejection
- Atenelol – Blood pressure (Beta blockers) – Temporary measure
Quite a lot! However this will come down with time.
I also learnt today that I have become slightly anaemic which is something that happens to many people post-op. This will settle down but I must admit I feel a bit shattered this week and not up to doing a great deal of walking or other light physical activity.
Well that rounds up this week’s “Transplant Diary” and I shall be back with more next week. In a nutshell after the scare earlier in the week, things seemed to have calmed down, fingers crossed it stays that way.